25-WORD DESCRIPTION:
The mission of the Down Syndrome Association for Families of Nebraska is to improve the lives of individuals with Down syndrome, by empowering them as well as educating and supporting their families and the larger community.
HOW WE USE YOUR CONTRIBUTIONS:
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$10 per week pays for a HIFT training session for a young adult with Down syndrome. ($520)
A STORY FROM OUR AGENCY:
I joined DSAF back in April of 2021, when I received a prenatal diagnosis of Trisomy 21 for my son. After being advised to terminate by two different doctors simply because of his diagnosis, I was a pretty scared and desperate first-time mother-to-be. I reached out to DSAF since they were in my hometown of Lincoln, and was extremely fortunate for the advice, education, resources, and support I immediately received. I’m sure most mothers remember their prenatal experience – but it’s such an odd and confusing place to be. On one hand, you’re being told “I’m so sorry” and “You really should consider termination” by healthcare professionals – and on the other hand, you’re very quickly welcomed into this club where everything is absolutely fine and wonderful. I firmly believe that knowledge is power, thus, with the help of DSAF, I learned everything I could: I read, I watched YouTube vidoes, I spoke to the “experts” and other families. I had a place to ask the “hard” or even uncomfortable questions, and I was connected to other mothers in the local and surrounding area. That quest for knowledge and understanding significantly helped to reduce the perceptions of isolation, and helped me face the fear connected with my son’s diagnosis.
ADDRESS/PHONE:
PO Box 57362
Lincoln, NE 68505
402-421-1338
